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Thursday, October 23, 2014

Being Mortal: Medicine and What Matters in the End




In Being Mortal, bestselling author Atul Gawande tackles the hardest challenge of his profession: how medicine can not only improve life but also the process of its ending
Medicine has triumphed in modern times, transforming birth, injury, and infectious disease from harrowing to manageable. But in the inevitable condition of aging and death, the goals of medicine seem too frequently to run counter to the interest of the human spirit. Nursing homes, preoccupied with safety, pin patients into railed beds and wheelchairs. Hospitals isolate the dying, checking for vital signs long after the goals of cure have become moot. Doctors, committed to extending life, continue to carry out devastating procedures that in the end extend suffering.
Gawande, a practicing surgeon, addresses his profession’s ultimate limitation, arguing that quality of life is the desired goal for patients and families. Gawande offers examples of freer, more socially fulfilling models for assisting the infirm and dependent elderly, and he explores the varieties of hospice care to demonstrate that a person's last weeks or months may be rich and dignified.
Full of eye-opening research and riveting storytelling, Being Mortal asserts that medicine can comfort and enhance our experience even to the end, providing not only a good life but also a good end.

Author - 


Atul Gawande is the author of three bestselling books: Complications, a finalist for the National Book Award; Better, selected by Amazon.com as one of the ten best books of 2007; and The Checklist Manifesto. He is also a surgeon at Brigham and Women's Hospital in Boston, a staff writer for The New Yorker since 1998, and a professor at Harvard Medical School and the Harvard School of Public Health. He has won two National Magazine Awards, a MacArthur Fellowship, and been named one of the world's hundred most influential thinkers by Foreign Policy and TIME. In his work as a public health researcher, he is Director of Ariadne Labs a joint center for health system innovation. And he is also co-founder and chairman of Lifebox, a global not-for-profit implementing systems and technologies to reduce surgical deaths globally. He and his wife have three children and live in Newton, Massachusetts. 

You can find more at http://www.atulgawande.com.







SOME OF THE CUSTOMER REVIEWS ABOUT THIS BOOK [ SAMPLE ]

1) This book could be a game changer - This book could be a game changer, if enough people read it and take it to heart. Atul Gawande addresses end-of-life care, and how we're getting it wrong, both within the medical establishment and in our families.

Dr. Gawande's book focuses both on medical procedures and living conditions in later life. Much of the book addresses the reality that as a person nears the end of life, decisions about his or her living situation are primarily aimed at ensuring safety at the expense of retaining autonomy, especially when adult children are making the decisions. "We want autonomy for ourselves and safety for those we love," a friend tells the author. We mistakenly treat elders as children, Dr. Gawande says, when we deny them the right to make choices, even bad choices. People of any age want the right to lock their doors, set the temperature they want, dress how they like, eat what they want, admit visitors only when they're in the mood. Yet, nursing homes (and even assisted living communities) are geared toward making these decisions for people in order to keep them safe, gain government funds, and ensure a routine for the facility.

In addition, Dr. Gawande shows how end-of-life physical conditions are most often treated as medical crises needing to be "fixed," instead of managed for quality of life when treatment has become futile. Life is more than just a stretch of years; it must have meaning and purpose to be worth living, he says. I think we've all heard this before (in fact, I read parts of this book in The New Yorker), but he builds a strong case for reform through case studies, stories from his own life, and examples of how individuals are either becoming victims of, or bucking, the system. He addresses assisted suicide only briefly, but he mentions it in relation to end-of-life care. "Assisted living is far harder than assisted death, but its possibilities are far greater as well," he writes.

The good news is that some people are doing what they can to improve the well-being of elders nearing the end of their lives. He demonstrates the beauty of hospice care in the home. He tells a great story of a doctor who convinced a nursing home to bring in two dogs, four cats and one hundred birds! It was a risky proposal, but the rewards were phenomenal. It made the place, and the people, come alive. I am aware, though, that these movements rely on individuals, and only if enough people have a vision for change will it come about. For that reason, I hope this book makes a big splash!


By N. B. Kennedy TOP 1000 REVIEWERVINE VOICE on September 23, 2014



2) "The End Matters" - I became a fan of Atul Gawande upon reading his first book in 2002: Complications: A Surgeon's Notes on an Imperfect Science. In reading many of his previous books I found he always asked questions: Why do we do things; for what purpose; is this working to achieve the best results for the patient in his physical and cultural circumstance? Gawande tackles the dilemmas of medical ethics by approaching them with sagacious common-sense. I think most of his books should be required reading in medical schools.

In this new book Being Mortal: Medicine and What Matters in the End, Gawande looks at the problems of the aging population and inevitability of death. He points out that you don't have to spend much time with the elderly or those with terminal conditions to see how common it is for modern medicine to fail the people it is supposed to be helping. In speaking of elder care he sadly points out that "Our reluctance to honestly examine the experience of aging and dying has increased the harm and suffering we inflict on people and has denied them the basic comforts they need most". Many physicians are so hell bent on preserving life that they cause horrible and unnecessary suffering.

Gawande points out that sometimes in striving to give a patient health and survival their well-being is neglected. He describes well-being as the reason one wishes to be alive. He looks at the "Dying Role" as the end approaches describing it as the patient's ability to "share memories, pass on wisdom and keepsakes, settle relationships, establish legacies and make peace with their God. They want to end their stories on their own terms." He feels that if people are denied their role, out of obtuseness and neglect, it is cause for everlasting shame.

Gawande shares his deep seated feelings in this book by revealing personal vignettes of how friends and family coped with these powerful and challenging issues. He follows a hospice nurse on her rounds. He discloses how is mother-in-law Alice's life is changed by taking up residence in a senior facility as the only reasonable option. Senior facilities and nursing homes, even the best run, are often sterile institutions that can cause psychological anguish. He includes how he dealt with the final wishes of his father. It is a melancholy yet empowering picture of a man and physician honoring his father.

Atul Gawande provides the reader with an understanding that though end of life care is inevitable there are ways to humanize the process. The patients, their families, the medical professionals are coming to terms with how to better face the decision making processes that will be, in many cases, the last decision. The subject matter is complex and sensitive but the moral of the book is that "
The End Matters".

By Miss Barbara VINE VOICE on September 26, 2014


3) An inspiring read that should be mandatory for anyone dealing with patients and families as they age and enter the end of life. - As a fan of Gawande's previous books and someone whose personal life is currently very much about the topics covered here, I found this a much-needed and absorbing read. Its honesty is sobering (and possibly shocking to those not intimately familiar with what passes for "healthcare" today in the United States).

Until you or a loved one are dealing with the healthcare/medical "system" these days, you can't imagine how much it can negatively affect your quality of life, no matter what your actual medical condition is or your life expectancy. We will all face aging, illness and death...sooner or later. But inevitably. We need more humanity and compassion from each and every person in the healthcare/medical system today. (If only they WOULD read this and get trained in how better to deliver the experience that patients---aka "customers" if you want to use the lingo of business, which healthcare has turned into.)

Getting the care you need, care that supports one's independence (as much as possible) and autonomy when health-challenged, as I've learned in my own life, is incredibly challenging, even if you have good health insurance and access to "good" doctors. So much of what is needed is obvious to those who are ill and aging--and to some (though certainly not all) of their families. But getting what you need? Difficult beyond belief.

It is encouraging to see someone of Gawande's success/influence taking on these issues. Real-life stories and experiences fill this book and they are important. You have to believe things can change for anything to actually begin to change. Just reading about the individuals striving to make life better for those in their care is encouraging. It's hard to be hopeful when one deals daily only with resistance to change and with people who don't seem to listen or hear (or maybe even care) what patients want and need. It takes courage for these folks to buck the system and to put their patients first.

As another reviewer noted, this could be a gamechanger. I hope so. We need change and we need to celebrate the people who are making a difference each day, whether in the hospital, doctor's office or nursing home. As a baby boomer, I know most of us will find real issues with how we are treated, and will be treated as we age and as our health fails.


By IRG VINE VOICE on October 1, 2014


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